MISSION

The Rare and Complex Epilepsies Alliance was created with the following objectives:

• Enhance community growth by building a network between all existing and future national associations.

• Create a single voice on common and / or transversal needs that cannot be reduced to the "simple crisis".

• Share best practices and initiatives;

• To develop together proposals for protocols and / or initiatives on transversal issues such as Transition, Repository of Drug, assistance and rehabilitation requests.

• Actively collaborate on initiatives in support of the community and specific needs;

• Activate collaboration for the production of evidence by analyzing the data collected through Clinical Registers and Survey;

• Contribute to developing, and therefore supporting, an active network of specialists in Rare and Complex Epilepsies to contribute to the sharing of knowledge and the dissemination of best practices;

• Collaborate and share activities and initiatives proposed by the European ERN EpiCARE working group;

• Identify lobbying opportunities, in order to raise social, political and medical awareness of Rare and Complex Epilepsies